Near the middle of Breast Cancer Awareness month falls October 13, Metastatic Breast Cancer Awareness Day. For all those that are aware of BC, not many are aware of metastatic BC. I know that until I actually had Breast Cancer, I didn't really pay much attention to it. I'm sorry for that. Metastatic Breast Cancer is the only form of Breast Cancer that kills. Breast Cancer contained in the breast and breast nodes, doesn't kill. It is when it spreads to the lungs, bones, kidney and brains that death is occurs. There is no cure for metastatic breast cancer. There are treatments that can sometimes prolong life but nothing so far there has been able to stop the spread, stop the death. The average life span from time of diagnosis of stage 4 (metastatic) to death is 18-24 months.
IT IS ESTIMATED THAT EVERY 2 HOURS IN CANADA, 1 WOMAN DIES OF METASTATIC BREAST CANCER.
MBC Time
Showing posts with label breast cancer. Show all posts
Showing posts with label breast cancer. Show all posts
Thursday, October 13, 2016
Breast Cancer Awareness Month - Day 12
Did you know that the Canadian Breast Cancer Foundation has a different branch you can donate to where the funds go specifically towards metastatic breast cancer? I didn't know, but now I do and so do you.
Remember, only once it's gone to metastatic state (stage 4) does breast cancer actually kill anyone. Prevention and treatment are great research options but the best way to save lives is to stop the deaths. CBCF Metestatic Fund
Remember, only once it's gone to metastatic state (stage 4) does breast cancer actually kill anyone. Prevention and treatment are great research options but the best way to save lives is to stop the deaths. CBCF Metestatic Fund
Tuesday, October 11, 2016
Breast Cancer Awareness Month - Day 11
It isn't over, until it is over, and even then, it might not be.
The first picture is June 2015 when I had my port inserted. It was removed in Dec 2015 with my mastectomy.
This picture is from Friday (Oct 6) when a new port went in because it is still not over. I am setting up for another chemo round, this time 6 months, then we will see. I suspect, this port will be with me for life.
Monday, October 10, 2016
Breast Cancer Awareness Month - Day 7-10
Sorry, I really did mean to post daily, but hey, day 7 included out patient surgery, then there was post surgery recover, a long weekend and life with twins all mixed in.
I think for a 4 day awareness post, I want to maybe talk about some things breast cancer is not.
It is NOT the lucky cancer. Sorry. No cancer is lucky. If you have ever said that to someone, apologize. Cancer sucks.
It is NOT curable. Yes, there are some treatments for early stages (up to 3). For some people, these treatments can even make them NED (no evidence of disease, what was formally thought of as remission). But it is not cured. Over 30% of those who are 'successfully' treated in early stages will go on to a stage 4 (terminal) breast cancer diagnosis. And there is no telling when. It can be in a week, a year, a decade or even 20 years. So even if it seems gone, there is no way to know that it won't return, when or how. It's not cured, it's just hiding really, really well.
It is NOT a sexy cancer. Just because it includes the word breast, does not mean it is sexy. Stop buying into cheerleaders in pink bras.
It is NOT a Facebook game. Don't post your bra color or some made up ambiguous comment to "catch" others commenting then spread the game. Just don't. If you see someone do it and say it is in the name of breast cancer awareness then please reply back with a fact about breast cancer. That is how you raise awareness.
A mastectomy is not a "free boob job". It is a means to try to save or extend a life. It's not a simple surgery and it can have a lifetime negative impact on the person.
There is more I'm sure but for now, I am done and heading to sleep soon. To those still following along, thanks!
I think for a 4 day awareness post, I want to maybe talk about some things breast cancer is not.
It is NOT the lucky cancer. Sorry. No cancer is lucky. If you have ever said that to someone, apologize. Cancer sucks.
It is NOT curable. Yes, there are some treatments for early stages (up to 3). For some people, these treatments can even make them NED (no evidence of disease, what was formally thought of as remission). But it is not cured. Over 30% of those who are 'successfully' treated in early stages will go on to a stage 4 (terminal) breast cancer diagnosis. And there is no telling when. It can be in a week, a year, a decade or even 20 years. So even if it seems gone, there is no way to know that it won't return, when or how. It's not cured, it's just hiding really, really well.
It is NOT a sexy cancer. Just because it includes the word breast, does not mean it is sexy. Stop buying into cheerleaders in pink bras.
It is NOT a Facebook game. Don't post your bra color or some made up ambiguous comment to "catch" others commenting then spread the game. Just don't. If you see someone do it and say it is in the name of breast cancer awareness then please reply back with a fact about breast cancer. That is how you raise awareness.
A mastectomy is not a "free boob job". It is a means to try to save or extend a life. It's not a simple surgery and it can have a lifetime negative impact on the person.
There is more I'm sure but for now, I am done and heading to sleep soon. To those still following along, thanks!
Thursday, October 6, 2016
Breast Cancer Awareness Month - Day 6
Breast Cancer is not a single disease. Each sub type responds differently and to different medication and influence.
This link in this chart is still only the tip of the iceberg too....
Some Breast Cancer Types
This link in this chart is still only the tip of the iceberg too....
Some Breast Cancer Types
Wednesday, October 5, 2016
Breast Cancer Awareness Month - Day 5
Here are some of my recommended books for kids with a mom with breast cancer. There are more, but these are those we've read that helped, at least a bit.
The Invisible String
Let My Colors Out
Mom Has Cancer
The Goodbye Cancer Garden
Our Mom Has Cancer
None of these books has given my kids (or me) a strong piece of mind, but they have opened conversations. I hope you never need them, but if you do, you now have some awareness of their existence.
The Invisible String
Let My Colors Out
Mom Has Cancer
The Goodbye Cancer Garden
Our Mom Has Cancer
None of these books has given my kids (or me) a strong piece of mind, but they have opened conversations. I hope you never need them, but if you do, you now have some awareness of their existence.
Tuesday, October 4, 2016
Breast Cancer Awareness Month - Day 4
Over 1/3 of those with early stage Breast Cancer will still go on to develop Metastatic Breast Cancer (stage 4). It can happen in 1 month, 1 year, 3 years, 10 years, even longer after the original cancer was considered 'cured'.
110 people, mostly women die of metastatic breast cancer in the USA every single day. How is that for being aware? Please watch the video below. It is less than 1 year old now. Both Maggie and Heather have since passed away from breast cancer. Hear their voices.
Monday, October 3, 2016
Breast Cancer Awareness - Day 3
Breast cancer affects the entire family, not just the "lucky" one who gets it. It is hard work to keep the rest of life normal for kids. When there are good days, they are celebrated.
Sunday, October 2, 2016
Saturday, October 1, 2016
Friday, September 30, 2016
Stop funding Breast Cancer Awareness, Prevention and Early Stage treatment!
Ha, I bet that got your attention No it was not a typo nor a way to fool you. I really do believe that.
Okay, who really is not aware that breast cancer exists? Awareness requires no funding, no pink ribbons, nothing. 1 in 8 women will be diagnosed with breast cancer. Those women are friends, mothers, daughters, sisters, wives; trust us, we are all aware. The one awareness I would happily fund is that women are not the only ones who get breast cancer. That is right. Not sure you all knew that, but men get breast cancer too. Now you are aware; tell two friends you know about this and they will be aware and tell two friends and "so on and so on".
As for funding early stages and prevention, while they are important I will ask you why is it SO important? Why is it so scary for someone to be told "You have breast cancer"? It's scary because of those told, 1/4 will become (or already are) metastatic, aka stage 4. And stage 4 is terminal, do not pass go, do not collect $200, it will kill you. And the stats on how fast it will kill you are beyond scary. From time of diagnosis until death, the average person with "mets" has 18-24 months to live. That is why a breast cancer diagnosis is so scary, even in an early stage, It's the possibility of stage 4 that scares people. Yes chemo and radiation are scary, but death is more scary.
So I have a proposition. Turn stage 4 breast cancer into a treatable condition that does not shorten life to under 2 years. Seriously. Make stage 4 cancer a chronic condition, drugs for life, even with side effects FIRST. Take away the death sentence as a priority Remove it as an option from the table.
Then and only then take one step back, and start to work on stopping early cancer from becoming stage 4. When that is done, work on preventing cancer.
But wait, you say. If they can truly prevent cancer, isn't that a better choice than working on stage 4? NO! NO! NO! Doing that is telling anyone who already has stage 4 cancer, who had cancer at any stage at any point in their life that could come back that they don't matter. And come on, this aspect has been worked on for many decades with no success. Stop making breast cancer a possible death sentence first then go backwards. Seriously. Tell the 113 USA women who die every single day that they matter.
Oh no, you say, "big pharma would never go for that". Um, if they were smart they would By focusing on treatment and prevention, so called big pharma is killing their own business.
Lets do the math and lets make it simple.
Lets say a 100 people develop an early stage breast cancer each year (very low but an easy number to work with). Lets also say treatment (probably chemo) costs 100 units a month. In an early stage cancer this is 6 months and then nothing. So we are at 100 people * 100 units * 6 months or 6,000. At this point, about 75% will remain cancer free for life. The other 25% will have a re-occurrence, not all will be stage 4 but let's go right there. Those 25 people will have 18 months of treatment (and then die) for a total of 2,500. Making the total money that "big pharma" will get from the original 100 diagnosed is 8,500.
Now do that math if stage 4 is a 'normal' lifespan but includes treatment, even keeping the current survival rate at 75%. We have the original 6k from that first treatment. But, then we have 20-50 years (or more) of lifetime treatment for those who became stage 4. Lets split hairs and go with 35 years. Now you have 100 per month at 12 months times 35 years or 42,000. Add that to the original 6k and you get 48,000.
Did you see that, if big pharma could effectively treat stage 4 they could get 41,000 extra for every 100 newly diagnosed patients. Maybe remind them of the profit potential. Pharmacological companies are for profit. They are. They will not change. Show them the real profit in effectively treating stage 4.
Scientist on the other hand, are all about the science, the discovery. There is not a scientist out there, studying cancer (or anything else) who does not want the fame that would come with a breakthrough discovery. Let them know they could also get the fame from stopping the death sentence, from finding long term, lifetime treatment as from a cure.
Stop the deaths. Stop the fear. Put the money where it will help the most.
Okay, who really is not aware that breast cancer exists? Awareness requires no funding, no pink ribbons, nothing. 1 in 8 women will be diagnosed with breast cancer. Those women are friends, mothers, daughters, sisters, wives; trust us, we are all aware. The one awareness I would happily fund is that women are not the only ones who get breast cancer. That is right. Not sure you all knew that, but men get breast cancer too. Now you are aware; tell two friends you know about this and they will be aware and tell two friends and "so on and so on".
As for funding early stages and prevention, while they are important I will ask you why is it SO important? Why is it so scary for someone to be told "You have breast cancer"? It's scary because of those told, 1/4 will become (or already are) metastatic, aka stage 4. And stage 4 is terminal, do not pass go, do not collect $200, it will kill you. And the stats on how fast it will kill you are beyond scary. From time of diagnosis until death, the average person with "mets" has 18-24 months to live. That is why a breast cancer diagnosis is so scary, even in an early stage, It's the possibility of stage 4 that scares people. Yes chemo and radiation are scary, but death is more scary.
So I have a proposition. Turn stage 4 breast cancer into a treatable condition that does not shorten life to under 2 years. Seriously. Make stage 4 cancer a chronic condition, drugs for life, even with side effects FIRST. Take away the death sentence as a priority Remove it as an option from the table.
Then and only then take one step back, and start to work on stopping early cancer from becoming stage 4. When that is done, work on preventing cancer.
But wait, you say. If they can truly prevent cancer, isn't that a better choice than working on stage 4? NO! NO! NO! Doing that is telling anyone who already has stage 4 cancer, who had cancer at any stage at any point in their life that could come back that they don't matter. And come on, this aspect has been worked on for many decades with no success. Stop making breast cancer a possible death sentence first then go backwards. Seriously. Tell the 113 USA women who die every single day that they matter.
Oh no, you say, "big pharma would never go for that". Um, if they were smart they would By focusing on treatment and prevention, so called big pharma is killing their own business.
Lets do the math and lets make it simple.
Lets say a 100 people develop an early stage breast cancer each year (very low but an easy number to work with). Lets also say treatment (probably chemo) costs 100 units a month. In an early stage cancer this is 6 months and then nothing. So we are at 100 people * 100 units * 6 months or 6,000. At this point, about 75% will remain cancer free for life. The other 25% will have a re-occurrence, not all will be stage 4 but let's go right there. Those 25 people will have 18 months of treatment (and then die) for a total of 2,500. Making the total money that "big pharma" will get from the original 100 diagnosed is 8,500.
Now do that math if stage 4 is a 'normal' lifespan but includes treatment, even keeping the current survival rate at 75%. We have the original 6k from that first treatment. But, then we have 20-50 years (or more) of lifetime treatment for those who became stage 4. Lets split hairs and go with 35 years. Now you have 100 per month at 12 months times 35 years or 42,000. Add that to the original 6k and you get 48,000.
Did you see that, if big pharma could effectively treat stage 4 they could get 41,000 extra for every 100 newly diagnosed patients. Maybe remind them of the profit potential. Pharmacological companies are for profit. They are. They will not change. Show them the real profit in effectively treating stage 4.
Scientist on the other hand, are all about the science, the discovery. There is not a scientist out there, studying cancer (or anything else) who does not want the fame that would come with a breakthrough discovery. Let them know they could also get the fame from stopping the death sentence, from finding long term, lifetime treatment as from a cure.
Stop the deaths. Stop the fear. Put the money where it will help the most.
Friday, November 20, 2015
One BIG step down
It's not over but the longest step is over. I had my last chemo injection. I have to get through the 3 weeks of side-effects but the end is near.
In four weeks, just 8 days before the guy in the big red suit comes, I go in for a double mastectomy. While all surgery is scary, I'm looking forward to this one. This is where they actually cut the nasty tumor out! How much better does it get than that.
Then, 4 weeks after that I start radiation. Current mind set is daily for 5 weeks. It could go up to 6 or down to 4 but whatever, and end is in sight!!!!!
The boys are doing as well as can be expected for 6 year olds. They have up days and down days but since being off work, and after I came back from the hospital a second time, the energy normally spent at the office, is now spent on them in the evenings. This makes our time together easier and I think it's helping. It's not perfect and I expect them to get upset when I go for surgery but I'm hoping the excitement of Christmas can help offset some of it.
I'll try to post more. I have lots of thoughts and partially finished posts but none seem to make it up here.
Thursday, July 9, 2015
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